I have a little favor to ask of you.
We had our monthly follow-up phone call with Dr. Goldberg last week. (For those of you interested in catching up with our medical journey, click here.)
In a nutshell, we are following a very specific step-by-step protocol. Step One, basically the foundation for the protocol, is addressing the chronic virus in Lily's brain by increasing her white blood cell count, which has been exceedingly low since Lily was born.
Since October, Lily has had three rounds of blood work done. Each time, the results have shown that her white cell count is even lower than when we started the protocol.
Without using too much medical lingo, basically Dr. Goldberg has been treating this low white blood cell count since October with two types of medication and for whatever reason, it's simply not working.
He has suggested we see a local pediatric immunologist but isn't really holding out much hope that they can tell us what the issue is, why it's happening, and what we can do about it. He just wants to make sure he's not missing anything.
Now, Dr. Goldberg still has options for us and is certainly not ready to say we've hit the end of the road. He's not frustrated or at a dead end or anything like that. He's already made one tweak in her meds and will be adding a new one this week.
But here's what I'm thinking: while we have seen some positive changes, I don't think we're going to see anything really big happen until we get to the bottom of this white cell issue. If we can figure out why her white cell count is low and take the necessary steps to improve it, then it stands to reason that we ought to see even more positive changes once this low count is no longer "holding her back".
So here's where the favor comes in.
The Rush family could really use your prayers. What can you be praying for the Bird? As always, we'd love it if you would join us in the totally audacious prayer that our sweet girl will talk. Just open up her mouth and let the words come flowing out.
But we'd also appreciate your prayers for that white blood cell count. We want, no, we need, it to increase. We need it to reach normal levels and stay that way.
And the God I know and love and trust and believe can do this thing!
I know this child is already a living, breathing miracle. And maybe that should be enough. But I am a greedy mama and I want more! And I know just the Person to ask for more miracles from!
So many of you have been with us right from the beginning of our sweet girl's life. Will you continue to be a part of our journey and pray for the Bird?
We thank you kindly.