So many of us special needs parents are tired. Worn out. Exhausted. We collapse into bed at the end of the day, only to wake up in the morning to do it all over again.
And the future can start to seem overwhelming.
And we can start to wonder if God even remembers us, let alone cares about us.
I always love it when I get a reminder, a little "refresher course" in God's great love for me. And for Bird.
Just in case we're not Facebook friends, here's what I posted this morning:
Ryan and I have a phone call with Dr. Najjar tomorrow (Wednesday) at 11:30 Texas time to go over all the test results from Lily's stay at NYU. Together, we'll come up with a new plan of treatment which might possibly require us to head back to NYC the following week. We are still very hopeful and feel certain that Dr. Najjar has a good handle on Lily's medical issues and how to treat them.
Dr. Souhel Najjar is most definitely one of my "153". He is counted and highlighted in yellow! God has blessed him with incredible intelligence and the gift of diagnosing and treating what often seems hopeless. God is using him in mighty ways to bring hope and healing to so many. And I am so thankful God opened doors for us to see him.
I'll keep you posted on what's next for Bird!
Now get out there and have a great day, sweet ones!