Fishing, Counting, and a Medical Update

The lovely Ann Voskamp had a blog post yesterday that I just had to share with you.

So many of us special needs parents are tired.  Worn out.  Exhausted.  We collapse into bed at the end of the day, only to wake up in the morning to do it all over again.

And again.

And again.

24/7/365.

And the future can start to seem overwhelming.

And we can start to wonder if God even remembers us, let alone cares about us.

I always love it when I get a reminder, a little "refresher course" in God's great love for me.  And for Bird.

Just in case we're not Facebook friends, here's what I posted this morning:

Lana Rush

Today, I am fishing yet again. And like the disciples in John 21, I am tired of the work and the long nights of catching nothing. I am tired of bloodwork and medical tests and crushing pills and medical mysteries. I am tired of cleaning toilets and doing laundry and mopping sticky floors. And there it is - Jesus telling the disciples to do it one more time, to cast their nets yet again, even though they have been empty time and time again. Jesus asking me to wake up and do it all over again. He is asking them to trust Him still. He is asking me the same. Peter casts and gets a net full of fish, 153 of them. He actually counted the fish. He counted to see what God had provided. And that is my reminder to count. Because even when it seems like Jesus has forgotten, there are at least 153 ways that show He has not. So today, I fish. I cast my net and I count. I write it down and I highlight in yellow. Because "it's a life that counts blessings that discovers its yielding more than it seems. The secret to joy is to keep seeking God where you doubt He is." 

Here's the link to Ann's blog post that I hope will refresh your body and soul this morning. 

And maybe even the next few mornings.

Medical Update:

Ryan and I have a phone call with Dr. Najjar tomorrow (Wednesday) at 11:30 Texas time to go over all the test results from Lily's stay at NYU.  Together, we'll come up with a new plan of treatment which might possibly require us to head back to NYC the following week.  We are still very hopeful and feel certain that Dr. Najjar has a good handle on Lily's medical issues and how to treat them.

Dr. Souhel Najjar is most definitely one of my "153".  He is counted and highlighted in yellow!  God has blessed him with incredible intelligence and the gift of diagnosing and treating what often seems hopeless.  God is using him in mighty ways to bring hope and healing to so many.  And I am so thankful God opened doors for us to see him.

I'll keep you posted on what's next for Bird!

Now get out there and have a great day, sweet ones!